Thanks to everyone’s orders with Mary Kay, another $125 has been raised for gene therapy research!
Ruth Edwards has generously offered to donate 10 percent of her profits to the Gwendolyn Strong Foundation from now on. Just put “SMA” in the comments section of your online order form.
In other news, we’ve ordered both a manual and a power wheelchair for Callie. We expect the manual chair to be here any day, and it could take 3 to 4 months to get her power chair. Callie chose “popstar pink” for the color of her power chair.
Callie continues to thrive in preschool and is currently going through a period of strength. The other day, Callie sat unsupported and played for about 20 minutes! That’s something she hasn’t done since infancy and it was very exciting. We’ve heard about other children with SMA having periods of strength. We also attribute this to her physical therapies and to the many prayers on her behalf.
We’ve started Callie on a calorie supplement that we add to her milk to help her gain weight. She’s still not to the 3rd percentile, which is where we’d like her to be. We’re hoping that she can gain some weight before winter sets in–if/when she gets sick, she needs to have more weight on her, and right now she doesn’t have any she can afford to lose.
We look forward to posting a picture soon of Callie in her new set of wheels!
It is so wonderful to read about Callie’s period of improvement. We will pray hard specifically for getting that “weight gain” in the 3rd Percentile where she needs to be. Thank you for these updates and for your inspiritation words on the blogs, those down times and times when you are up, but whether up or down to feel your faith that despite all Callie and you are going through, your faith is solid and you know that God has purpose in all things He allows. As I pray for Callie and all of you each day, I pause in my asking for improvement to thank HIM for you and your example of faith during this time of difficulty but also I time of hope and faith….thank you,
Your Ole Friend from The Shoals,
Bob
Callie is beautiful and I know you’re doing a wonderful job to give her a life that is as beautiful as she is. I continue to pray for all of you. Love Terri
We love these updates and hearing about the spurts of strength. How good that must feel to Callie.
Eager to hear how she does with the new chair she’s getting.
Love
Peggy and Sam