Yesterday, Callie graduated from intensive care to the step-down unit. Callie’s lungs sound clear and her doctors think her sickness has resolved.
Now we’re left with SMA.
Several times over the past few days Callie’s blood-oxygen level has dropped and remained too low, despite having breathing support from bipap and oxygen and despite the fact that her lungs are healthier now than they were a week ago.
This is happening because SMA has weakened Callie’s body to the point that fighting a cold leaves her unable to inhale and exhale regularly.
We hope a few days of rest will give Callie back the reserve strength she needs. If she is not able to regain the strength she had before she woke up with a runny nose on May 26, she will need more support from bipap and oxygen indefinitely.
We will be discussing Callie’s short and long-term needs in a couple of days with some of her doctors at Duke. We still hope she’ll be able to come home from the hospital this week.
Just give me a call when you want me to drop by with food, I have the baked Alfredo dish in the freezer when you are ready.
We continue hoping and praying for Callie’s improvement, and for your continued strength.
Will only Amen what GrandMother Carol has said….Grandmothers are always do and say the right things because they love their Grandchildren so very much….. Callie “has the strenght of spirit that defies the weakness of her body”. Grandmother is so right….what a testimony to life…. a special little girl, so unique with that “spirit”…thanks Carol.
bdrake
What a joy she is – so sweet! Sending her a big hug from Greensboro!
Callie is such a little trooper, happily chattering away and playing with her toys while undergoing bipap and cough assist treatments in the hospital. Callie emanates love and life– she has a strength of spirit which defies the weakness of her body. What a testimony!
Praying for you all, for peace and comfort, for wisdom in making decisions for Callie. Praying that Callie quickly recovers from the last bout with the cold and is able to return home soon.
Callie is receiving the very best of medical care and is in the care of Almighty God, the Holy One of Israel, the one true God for whom nothing is impossible.
Praying for all of you..
Love you…