Callie had a restful night (and afternoon nap today) on the Bipap machine.
However, her IV went bad twice, and the IV team cannot get another IV going. Her IV likely infiltrated (burned through the vein to where fluids were leaking into the surrounding tissues) because of the nutrition solution she was getting, despite it being a milder concentration.
The doctors are considering other options for IV access, such as a central line or a PICC line. Both of these options are more invasive and prone to infection if not cared for properly. But both also would allow Callie to get more fluids, nutrition, etc., without damaging her veins. And both could be a source for future blood samples so Callie wouldn’t have to be stuck each time the lab needs a sample.
So we’ve reached a difficult spot when it comes to her nutrition. We’re hoping to be able to sort out what is best for Callie in the next day or so.
Please pray that Nathan and I will be able to navigate these difficult decisions that are coming sooner than we had anticipated. Thank you for all your prayers and supportive words on this blog.
We’d also like to thank our friend Deborah, who set up a meal rotation for our family.
Hey Nathan & Christy, this is Joshua, (old friend from PART bus) I just got link to this site from Brian.
Please let me know if there is anything I can do to help. I would love to play music for benefit or anything like that, but on an immediate basis, can I bring your family a meal sometime? Just send me an email and let me know.
You are all in my thoughts and prayers.
Christy, I will be praying for you and Nathan. It sounds like you have a very loving and supportive church family. That is wonderful!
Please know that you and your family have been lifted up in prayer and will continue to do so through this difficult time. May God give you the wisdom as you make decisions that you must make. May God do for your family that none other can do and the peace that only He can provide.
May God lead you in your decisions concerning Callie. You all are such a precious family, and I can’t imagine the strain it puts on you when you have boys at home that need you also; yet children are flexible, and it sounds as though they are in good hands. Thinking of all of you today and hope things go well in the coming days.
My prayer for Callie is that she feels the very presence of God as she is being cared for – even during the most difficult parts of her day.
Nathan and Christy, your boys were very happy at supper last night (especially Ezra because he fooled me into giving him an extra dessert). Your church family loves you!
May God’s great wisdom be yours as you care for your precious angel!
Callie and your famly are in my constant thoughts and prayers. Friday I am available all day if I can assist you in any way. Please just let me know. I can even drive to Duke if you would like me to bring you some lunch or bring Callie her favorite little red therapy Pig to snort at. Anything you need please let me know. Sending my love and prayers.
All of you are always in my heart and I am constantly lifting you up in prayer. I love you.
We are praying for strength and wisdom that only our heavenly Father can provide. May peace be with you as you face these difficult situations. Praying for your boys as well. I know it upsets them to see their sister like this. May God Bless.
Oh, Jesus, You promise to give us strength when we are weary and weak. Please bestow YOUR mighty strength upon Nathan and Christie. Give them guidance and specific routes to follow concerning Callie. Give the doctors sensitivity to them and fill them w/ Your wisdom. Give the family rest…physically and emotionally and help them to lean upon You and trust You and not give way to fear. Give them assurance of Your love and protection now. Amen.
Christy – I so appreciate you taking the time to keep us posted on Callie’s condition. You and Nathan are so dear and I am praying for you all. Love, Anne
I will pray that the IV works when they try it again and Gods guidance as you make your decisions.