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Still concerned

Thanks to everyone for the thoughts and prayers in response to our last post.

Callie is still not feeling very well. Managing her secretions has been a constant battle over the past few days. We’re grateful to have medical equipment at home for this purpose.

But to win this battle with allergies or whatever it is that’s causing so much trouble, we’re starting to think Callie will need more help than we can give her at home. We’ll be checking in with her primary care physician Monday to see what he thinks.

Good news includes that she hasn’t had much of a fever and that her oxygen saturation level hasn’t dipped to dangerous levels. We’re still hoping to get Callie past this trouble without needing a hospital visit. But, of course, we’ll do whatever is best for her.

Thanks, again, for reading our updates. We’ll post again within a few days or as things change.

Day 3

With the exception of one low-oxygen episode, Callie rested well last night. But after waking this morning her oxygen level started dropping below 90 percent, and it was not responding to the usual interventions such as cough assist and chest PT, etc. So a respiratory therapist tried deep suctioning Callie’s lungs, which helped get her oxygen saturation level back into the 90s.

The doctors think the virus has run its course but that the lingering effects — increased mucus (i.e., a common cold) — are too much for Callie to handle on her own.

We now have a plan for administering oxygen tonight if Callie needs it, and although the doctors have been in touch with her pulmonologist all weekend, he will be back at the hospital tomorrow. He may order a sleep study to see whether Callie needs more oxygen intervention, which we don’t yet have available at home.

So it seems she may be in the hospital until mid-week at least.

Since Callie’s diagnosis about a year ago we knew this kind of week was coming, but we were not prepared for it.

We are thankful for your prayers — which we see as the only explanation for Callie’s restful night last night. We also would like to thank Chris and Sandy Franks, Pam Mercer and others at our church for helping take care of Callie’s three older brothers today.