{"id":810,"date":"2018-06-23T20:57:46","date_gmt":"2018-06-24T00:57:46","guid":{"rendered":"http:\/\/www.calliegolden.org\/blog\/?p=810"},"modified":"2020-05-24T20:05:39","modified_gmt":"2020-05-25T00:05:39","slug":"wrapping-up-another-year","status":"publish","type":"post","link":"https:\/\/www.calliegolden.org\/blog\/wrapping-up-another-year\/","title":{"rendered":"Wrapping up another year"},"content":{"rendered":"
\"Callie<\/a>

Callie with one of her best friends, Ella Rose.<\/p><\/div>\n

Callie just finished third grade. It was a good year, with the exception of shedding tears over math.<\/span><\/p>\n

The kindness of children who are in Callie\u2019s life always amazes us. Everyday, a group of girls has recess inside with Callie instead of going outside to run around on the playground with other classmates.<\/span><\/p>\n

The girls play with mini Lalaloopsies, draw, or play teacher together. Friendship is one of the biggest blessings in Callie\u2019s life.<\/span><\/p>\n

\"Callie<\/a>

Callie and her teacher, Miss Packer.<\/p><\/div>\n

There were bumps along the way this school year. In December and January, Callie completed the four loading doses of Spinraza and we ultimately decided not to continue with the treatments.<\/span><\/p>\n

Nathan and I didn\u2019t see any improvement in Callie\u2019s strength or stamina, and we were putting Callie at risk with every treatment, which was administered by spinal injection.<\/span><\/p>\n

We have always believed Callie should have a say in decisions that affect her life. After asking her on several occasions if she was sure she wanted to stop the treatments (something she\u2019d been begging to do after the first injection), she finally said, \u201cI can\u2019t do that [Spinraza] for the rest of my life.\u201d<\/p>\n

It\u2019s her life to live, and we\u2019re grateful for the peace God has given her heart.<\/span><\/p>\n

In February, after her ninth birthday, Callie got what we think was the flu with recurrent pneumonia. She stopped eating and, for a couple days, was withdrawn and not very interactive. <\/span><\/p>\n

After an uncertain couple of weeks, Callie began improving, and we\u2019re grateful for the additional time we\u2019ve been given with her.<\/span><\/p>\n

As always, Callie is making the most of her life. She\u2019s looking forward to a busy summer:<\/span><\/p>\n