{"id":707,"date":"2015-07-24T15:11:39","date_gmt":"2015-07-24T19:11:39","guid":{"rendered":"http:\/\/www.calliegolden.org\/blog\/?p=707"},"modified":"2015-07-24T15:11:39","modified_gmt":"2015-07-24T19:11:39","slug":"new-problems","status":"publish","type":"post","link":"https:\/\/www.calliegolden.org\/blog\/new-problems\/","title":{"rendered":"New problems"},"content":{"rendered":"

We\u2019d like to thank everyone who has prayed for Callie and our family as we\u2019ve dealt with her back pain. We were referred to a palliative care clinic at Brenner Children\u2019s Hospital that deals with medically fragile children. Managing pain is one of their specialties, so we\u2019ve been trying several combinations of medicines to try to find a magic solution.<\/p>\n

A new, much bigger concern we have is that Callie needs dental surgery. For many people, this would be a basic, outpatient procedure. But with Callie\u2019s high aspiration risk and her inability to protect her airway, this procedure will require general anesthesia, and she\u2019ll have to be admitted to Duke Hospital.<\/p>\n

\"Callie<\/a>

Callie at the beach earlier this month. (Photo by Debbie Bagwell.)<\/p><\/div>\n

This presents a few challenges for us. First of all, Callie has major anxiety related to anything medical. She loves her pulmonologist, Dr. Kravitz, yet still cries and begs to go home constantly when she has appointments. Another challenge is the fact that when she\u2019s taken off the breathing machine after surgery, she\u2019s likely to need her Bi-pap machine \u2013 which she hates. So we\u2019re working with her now to try to get her to tolerate it.<\/p>\n

We saw Dr. Kravitz last Friday, and as always, he\u2019s already planning. As soon as he heard from the dentist that Callie needed dental work, he contacted one of the pediatric anesthesiologists and a doctor who leads the pediatric intensive care unit (PICU). Dr. Kravitz likes to plan for every worst-case scenario, then hope for the very best. Having him around makes us feel a lot more secure. He says that hopefully, she\u2019ll wake up in recovery, need her Bi-pap minimally, or not at all, and be out of the hospital in 24 to 48 hours.<\/p>\n

The procedure is scheduled near the end of August. For the past few weeks, and likely for a number more, we\u2019ve felt overwhelmed, stressed and worried. We\u2019ve seen some things worsen quickly, such as not being able to ride in a car seat more than 15 to 30 minutes without having to be repositioned due to pain and discomfort. Some things we can\u2019t really pinpoint.<\/p>\n

On a positive note, we had a wonderful trip to the beach a couple weeks ago. Callie loved sitting in the water, looking for sea shells and playing in the pool. It was nice to have such a good respite before the chaos of school begins.<\/p>\n","protected":false},"excerpt":{"rendered":"

We\u2019d like to thank everyone who has prayed for Callie and our family as we\u2019ve dealt with her back pain. We were referred to a palliative care clinic at Brenner Children\u2019s Hospital that deals with medically fragile children. Managing pain is one of their specialties, so we\u2019ve been trying several combinations of medicines to try […]<\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_s2mail":"yes","footnotes":""},"categories":[4,6],"tags":[],"class_list":["post-707","post","type-post","status-publish","format-standard","hentry","category-daily-life","category-health"],"_links":{"self":[{"href":"https:\/\/www.calliegolden.org\/blog\/wp-json\/wp\/v2\/posts\/707","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.calliegolden.org\/blog\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.calliegolden.org\/blog\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.calliegolden.org\/blog\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/www.calliegolden.org\/blog\/wp-json\/wp\/v2\/comments?post=707"}],"version-history":[{"count":2,"href":"https:\/\/www.calliegolden.org\/blog\/wp-json\/wp\/v2\/posts\/707\/revisions"}],"predecessor-version":[{"id":710,"href":"https:\/\/www.calliegolden.org\/blog\/wp-json\/wp\/v2\/posts\/707\/revisions\/710"}],"wp:attachment":[{"href":"https:\/\/www.calliegolden.org\/blog\/wp-json\/wp\/v2\/media?parent=707"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.calliegolden.org\/blog\/wp-json\/wp\/v2\/categories?post=707"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.calliegolden.org\/blog\/wp-json\/wp\/v2\/tags?post=707"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}