This past weekend, Callie developed her 2nd or 3rd cold in a year’s time. We went to her pediatrician on Monday and he heard a little fluid in her lungs and discovered a whopping ear infection. We started her on an antibiotic and were relieved that this was something that was treatable. Between the antibiotic and her aggressive pulmonary therapy, we knew we’d have this licked in no time.
Then yesterday evening Callie’s status worsened. Today we went to the doctor again and she’s developed aspiration pneumonia. This is one of the most dangerous conditions with SMA. Since SMA affects all muscles in the body, her muscles used for swallowing are weakened as well. So food and drink can inadvertently pass into her lungs rather than into her stomach.
We’ve started her on another, stronger antibiotic and several other medications to help with respiratory function and comfort.
As always, we don’t know where this will lead. All we know right now is that we have a happy little girl who’s very sick and very loved.