Since we last posted, Callie’s condition has improved even more. Her strength seems to be close to where it was before she got sick a couple weeks ago.
Today her new home care company brought a Trilogy Bipap machine. It’s one of the most popular models, mainly because it’s more sensitive to her breathing, has more safety features and is very portable.
When we return home — hopefully within a few days — we will be making some changes in Callie’s day-to-day care. We will continuously monitor her heart rate and oxygen saturation level with a small machine Callie calls “my toe.” (She calls it that because we always put the sensor on her toe.)
This way we will be more likely to notice subtle changes that could indicate she’s starting to get sick so we can act.
We’re very grateful to have our happy, energetic girl back and look forward to having her home.