Callie’s been home from the hospital for a week, and we’re grateful to have a more normal life for her and the rest of our family again.
In the past week we’ve settled into a plan for Callie’s nutrition.
While she’s asleep we’re using her new G-tube to give her calorie-rich formula and fluids. While she’s awake she eats and drinks small amounts orally, based on her appetite.
She is not yet getting the calories she needs, but we’re slowly increasing the volume in her tube feedings based on how well she tolerates them.
We’re taking this process a lot more slowly than we did in the hospital, where tube feeding was making Callie miserable.
It’s been great to have Callie back home. She was very excited to be back in preschool this week, and we hope to have her back in physical therapy as soon as possible.
We’re planning to get back on track with thank you notes, too. But for now we’d like to thank everyone who has offered thoughts, prayers, money, food, cards, notes, child care, toys and other kinds of support. You’ve all helped keep us going through the past month.