When we posted last night we felt certain Callie would be home within 24 hours. But a half hour after publishing that post, a nursing assistant stopped by to weigh Callie and everything changed.
For the second day in a row Callie had lost a significant amount of weight. She also had not had a wet diaper all day. The issue of her nutrition had gone from something to be dealt with later to her primary health issue.
So it was not a surprise this morning when the doctors on duty said Callie should not leave the hospital. We were discouraged at first, but there was no way to deny that Callie needed some kind of intervention to prevent becoming dehydrated.
We’re still not sure what form that intervention will take in the long term, but a very skilled nurse from the Pediatric Intensive Care Unit succeeded in starting an IV in Callie’s arm this afternoon, so she is getting fluids and other nutrients right now as she sleeps.
This short-term solution should get her out of danger while giving us some time to determine how to best address her long-term nutritional needs.
Callie’s lungs – her original reason for being admitted into the hospital – continue to sound better each day. Her new bipap machine is allowing for better breathing at night. Overall she’s in much better shape than she was a week ago.
We’ll continue to post updates as we learn more and seek to make the best decisions for Callie.