Callie had a restful night (and afternoon nap today) on the Bipap machine.
However, her IV went bad twice, and the IV team cannot get another IV going. Her IV likely infiltrated (burned through the vein to where fluids were leaking into the surrounding tissues) because of the nutrition solution she was getting, despite it being a milder concentration.
The doctors are considering other options for IV access, such as a central line or a PICC line. Both of these options are more invasive and prone to infection if not cared for properly. But both also would allow Callie to get more fluids, nutrition, etc., without damaging her veins. And both could be a source for future blood samples so Callie wouldn’t have to be stuck each time the lab needs a sample.
So we’ve reached a difficult spot when it comes to her nutrition. We’re hoping to be able to sort out what is best for Callie in the next day or so.
Please pray that Nathan and I will be able to navigate these difficult decisions that are coming sooner than we had anticipated. Thank you for all your prayers and supportive words on this blog.
We’d also like to thank our friend Deborah, who set up a meal rotation for our family.