Close to midnight last night, Callie spiked another fever. The doctors drew some lab work and started antibiotics, even though they still feel this is a virus.
Callie continued to have trouble with her oxygen level last night and we administered “blow-by” oxygen–a tube that blows oxygen near her face. That got her through the night pretty well.
However, this morning, her oxygen levels were in the 80s. She was wide awake and we had already done our little routine of chest PT, cough assist and deep suction. This time, we put oxygen directly into her nose, which helped some. Even though she was exhausted, we did a second round of deep suctioning. That seemed to do the trick because her levels came up to the low 90s and she took a nap afterward without requiring oxygen.
Her pulmonologist, an SMA expert, came to see her today and decided to start putting a bipap machine on her while she’s sleeping. A bibpap machine basically forces oxygen into the lungs and will help her breath easier, clear secretions and rest better. It’s non-invasive ventilation as opposed to intubation with a ventilator. He doesn’t think Callie will need to be on a ventilator during this admission.
The only other lingering issue is Callie’s nutrition. She hasn’t eaten well in about 4 days. Although she’s getting IV hydration, she’s not getting enough calories. That also affects her breathing since she needs energy to help herself breath. We plan to start IV nutrition tomorrow. Our hope is that the bipap will help get her through this difficult period and that she will start eating well again before needing more invasive methods of nutrition.
Thanks to Fran and Sandy for keeping our boys today so Nathan and I could be at the hospital together with Callie.