Callie was admitted to Duke University’s medical center today. Her doctors strongly suspect that she has a virus (RSV has essentially been ruled out) and children with SMA cannot tolerate common illnesses as well as other children.
Nathan and I noticed Callie had an increasing cough that began Wednesday night. This alone isn’t alarming or uncommon with SMA. Callie was seen by her primary doctor Thursday afternoon just to make sure everything was OK. All of her vital signs were normal, as was her activity level. We increased her allergy medicine because her nose was a little on the runny side.
Last night however, Callie’s health became more worrisome. Her oxygen level was low, her heart and respiratory rates were elevated and she couldn’t sleep.
We left for Duke’s ED first thing this morning after speaking with her doctors. By the time we got there, she had developed a fever as well.
She had a chest xray as well as lab work done. Callie is spending at least one night in the hospital because she’s still too unstable to come home.
We’ll know more tomorrow morning and the doctors have said they will check on her frequently during the night.
We would appreciate your prayers during this particularly difficult time for our family. This has served as a reminder of how fragile Callie’s life is. Please pray that we will not allow worry and anxiety to dominate our thoughts and actions.
Tonight, Callie has her special pillow and blanket, her stuffed fox, her “Little Elmo” and her Daddy to help take care of her.
And for now, she’s doing well.