Thanks to everyone’s orders with Mary Kay, another $125 has been raised for gene therapy research!
Ruth Edwards has generously offered to donate 10 percent of her profits to the Gwendolyn Strong Foundation from now on. Just put “SMA” in the comments section of your online order form.
In other news, we’ve ordered both a manual and a power wheelchair for Callie. We expect the manual chair to be here any day, and it could take 3 to 4 months to get her power chair. Callie chose “popstar pink” for the color of her power chair.
Callie continues to thrive in preschool and is currently going through a period of strength. The other day, Callie sat unsupported and played for about 20 minutes! That’s something she hasn’t done since infancy and it was very exciting. We’ve heard about other children with SMA having periods of strength. We also attribute this to her physical therapies and to the many prayers on her behalf.
We’ve started Callie on a calorie supplement that we add to her milk to help her gain weight. She’s still not to the 3rd percentile, which is where we’d like her to be. We’re hoping that she can gain some weight before winter sets in–if/when she gets sick, she needs to have more weight on her, and right now she doesn’t have any she can afford to lose.
We look forward to posting a picture soon of Callie in her new set of wheels!